Trippie bri rare condition.

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The Rare Resources guides have been produced by Genetic Alliance UK for families who have recently received a diagnosis of a genetic or rare condition, are on the journey to a diagnosis or who have been told their child’s condition is so rare they might not get a diagnosis. These guides are downloadable toolkits of information and sources of ...

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Wednesday 9 May saw the launch of our report on the mental health impact of living with a rare disease. This work evolved from an inquiry conducted by the All Party Parliamentary Group (APPG) on Rare, Genetic and Undiagnosed Conditions, which identified mental health as a key issue facing rare disease patients and carers.

Published. 9 January 2021. Rare Disease Framework sets out vision to improve the lives of more than 3.5 million people with rare diseases in the UK. The framework will speed up diagnosis, increase ...

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